[Last modified: November, 29 2024 12:03 PM]
I chose the case of Pakistan women who are survivors of domestic abuse.
This case has multiple issues of ethics: obtaining informed consent in writing during the first publication was problematic, and ethical research maintains documented consent, especially with publications involving identifiable participants; further, verbal consent is never going to be enough, as noted earlier, in this highly sensitive context of survivors of domestic violence. (Even though it is understandable that they knew them, but I think let’s get formal consent would be better) This is really a situation that has to be sorted out by retrospectively getting consent, with real awareness of the implications of this publication of her story. Secondly, data protection is a big issue since the woman’s identifiable information and traumatic experiences were publicly shared. It is arguable that a woman wanted her name to be in the public, but in this case, I think the consent was not informed properly. She deserves to know the transparency and procedure of the research so she can decide properly. The data in the future should be anonymized and well-stored. Another thing is Power dynamics and coercion: Survivors of domestic violence may feel obligated to comply with the student due to perceived authority or gratitude, compromising voluntary participation. The participants are very vulnerable, and the subject is sensitive. Any research in this context needs to be done with extreme caution to avoid retraumatization. Approval should go beyond the Anthropology Ethics Committee to the UCL Research Ethics Committee, given the high risk due to the involvement of vulnerable participants and sensitive topics. Future research must adopt rigorous ethical safeguards, including informed consent, confidentiality, and trauma-informed practices.
If I were on an ethics committee, I would guide the student to address several critical ethical considerations in order for her research to meet the highest ethical standards. First and foremost, informed consent is a non-negotiable requirement. Retrospective informed consent shall be sought from the woman whose case was published. She must be fully informed of possible implications arising from the publishing of her name and personal experience with all possibilities of potential harm and stigma. In all future cases, informed, voluntary consent in writing, ensuring the research purpose and freedom to withdraw, with assurance on the protection of privacy, should be obtained. The principle of confidentiality and anonymity is taken as important; the student must anonymize all data used within the dissertation, except when a participant has consented in writing to a named reference-even in previously published accounts. Given that domestic violence is sensitive in nature, a trauma-informed approach would involve taking necessary care to be sensitive to participants‘ emotional safety and avoiding their retraumatization; access to support services will be provided should there be a need. It is also very important to consider power dynamics; survivors in a refuge may participate because they feel the student is an authority, or as a way of being thankful to the refuge. The student should make sure that participation is completely voluntary and specifically say that their refusal to participate would not affect services extended to them. Given the vulnerability of the participants and the sensitive nature of the topic, this project represents a high-risk study and must be reviewed by the UCL Research Ethics Committee, which has the capacity to rigorously evaluate the complexities involved. She should also work closely with the NGO running the refuge to ensure that her research is in line with their policies and does not jeopardize the safety or trust of the women in their care. Furthermore, strict adherence to UCL‘s data protection policies and GDPR requirements is necessary for safely storing and managing research data, with appropriate measures to prevent unauthorized access. By following this, the student will be able to conduct ethically robust research that upholds the dignity, safety, and autonomy of all participants, while addressing the sensitive nature of the topic responsibly.